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SDS Events - Global

Community Calendar

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Global SDS Family Coffee Chat
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Upcoming and Past Events

  • Global SDS Family Coffee Chat
    Global SDS Family Coffee Chat
    Date multiple
    dom 10 nov
    Virtual event
    Global SDS Family Coffee Chat
    10 nov 2024, 15:00 – 17:00
    Virtual event
    Monthly virtual get-together to build community and support.
    Registration Info
  • Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    dom 19 mag
    Virtual. Register at sdsalliance.org/cce
    Ask an Expert: Dr. Lisa McReynolds on Clones, Germline, and Somatic Mutations, and why they matter for SDS
    19 mag 2024, 14:00 – 15:00 GMT-4
    Virtual. Register at sdsalliance.org/cce
    Details
  • SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    sab 13 apr
    free virtual event
    SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference
    13 apr 2024, 13:00 – 19:00 GMT-4
    free virtual event
    This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
    Details
  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    sab 20 mag
    Virtual event
    POPS: Global Patient Advocacy and Partnering Summit
    20 mag 2023, 10:00 – 15:00 GMT-4
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
    Details
  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    mar 18 apr
    Robinson College, Cambridge, UK
    10th International Congress on Shwachman-Diamond Syndrome
    18 apr 2023, 09:00 GMT-4 – 21 apr 2023, 13:00 GMT-4
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
    Details
  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    ven 24 mar
    Paris
    4e journées des neutropénies (4th French National Neutropenia Days)
    24 mar 2023, 09:00 – 16:00 CET
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
    Details
  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    sab 30 apr
    Virtual
    SickKids Canada - National MFM Virtual Patient and Family Conference
    30 apr 2022, 12:00 – 18:00 GMT-4
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
    Details
  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    sab 24 ott
    Virtual run/walk, location of your choice
    Fun-Run-Walk October 2020
    24 ott 2020, 07:00 GMT-4 – 01 nov 2020, 23:00 GMT-5
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
    Details
  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    dom 12 lug
    Camp Sunshine, Cosco, ME, USA
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    12 lug 2020, 14:00 GMT-4 – 16 lug 2020, 10:00 GMT-4
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
    Details
  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    sab 29 feb
    Painting with a Twist, North Andover, MA
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    29 feb 2020, 14:00 – 17:00 GMT-5
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
    Details
  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    dom 15 set
    Boston, MA
    SDS Registry Family Day in Boston, MA, US
    15 set 2019, 08:00 – 16:00 GMT-4
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
    Details
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